Tuesday, July 5, 2011

Driving for Charity: June 2011 - Congenital Disorder of Glycosylation

I made a campaign promise, at the urging of Matt Pitta, WXTK Radio news director, to pass through my state representative travel per diem to a local charity each month. Unlike most of us who do not get paid to commute, legislators receive payments based on the distance they drive to the Statehouse. My per diem is $45. Click here to see “Who gets paid to drive to work?”

June’s per diem payment of $315 represents seven trips to the Statehouse and I am honored to donate that amount to help a three-year-old girl who suffers with Congenital Disorder of Glycosylation (CDG). This disorder includes numerous outward symptoms including difficulty in feeding, slow weight gain, and persistent vomiting. It is fatal in 20% of infants and produces serious, life-long effects for those who survive infancy.

Managing this situation has been arduous, to say the least, for her parents. Their pediatrician has recommended purchasing an iPad and a specialized program to help their little girl learn at a better pace, but the cost of an iPad and the software will run close to $800. That adds just one more financial challenge to the already long list of expenses not covered by their health insurance plan.

A contribution directly to a person-in-need is not tax deductible as a charitable donation, but if anyone who reads my blog is interested in making a small contribution to help, I will be happy to collect those checks and forward the total amount to the parents. Make your check payable to Randy Hunt CPA PC and put "iPad for CDG child" on the memo line. Mail to:

Randy Hunt CPA PC
297 Quaker Meeting House Road
East Sandwich, MA 02537

4 comments:

  1. The check is in the mail.

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  2. Hi Randy...Our kids are counting change this morning and have come up with $10 worth to donate. They are each donating $4 from their own "coffers". We will match and round up...so count on $30 from the Kiedeisch family on its way. I will place in the mail today. Always wish we could give more. Thank you for the putting out the opportunity to learn about this disorder and to help!

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  3. Wendy, I thank you and your kids with all my heart.

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